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1.
Support Care Cancer ; 31(5): 296, 2023 Apr 24.
Article in English | MEDLINE | ID: covidwho-2295464

ABSTRACT

PURPOSE: Motivation to treat cancer and prevent its negative impact has been largely explored in a non-pandemic context. However, little is known about the motivation to comply with the treatment, especially during a pandemic. To fill this gap, we have explored the individual and contextual factors impacting patients' motivation during the COVID-19 period using the integrated model. METHODS: We have conducted two qualitative studies before (study 1) and during the COVID-19 (study 2) period in a cancer centre. We respectively interviewed 30 and 22 patients with various chronic cancers in study 1 and also with COVID-19 in study 2. Data analysis was based on content analysis and grounded theory approach identifying the factors affecting patient motivations during both periods, and then comparing them. RESULTS: Our results show the mechanisms that allow patients to maintain their motivation despite the threats related to COVID-19. They underline the importance of respecting the rules and laws for patients' motivation. CONCLUSION: Compliance with legislation fuels the psychological need of protection in patients, which is a key determinant of motivation in the context of the pandemic. Considering patients' self-regulatory activities to assess motivational factors, going beyond clinical aspects, to include organisational and quality-of-life-related aspects throughout their care pathway is crucial.


Subject(s)
COVID-19 , Neoplasms , Humans , Motivation , Neoplasms/therapy , Patient Compliance , Quality of Life/psychology
2.
Support Care Cancer ; 29(8): 4485-4492, 2021 Aug.
Article in English | MEDLINE | ID: covidwho-1037364

ABSTRACT

PURPOSE: The Gustave Roussy Cancer Institute implemented a patient-reported outcome platform (CAPRI-COVID) for cancer patients with coronavirus disease 2019 (COVID-19) to quarantine patients at home while ensuring monitoring of COVID-related symptoms and securing the care pathway. In this study, we described the CAPRI-COVID intervention, evaluated its use, and presented results of the tracking indicators with a focus on the nurse navigators' (NNs) activities and the experience of patients. METHODS: Data of 130 cancer patients with COVID-19 diagnosed from March 23 to June 5, 2020, were collected. Six COVID-related symptoms were monitored daily, either by the patient via the CAPRI mobile application (CAPRI App) or by NNs via telemonitoring. In the cases of worsening or new-onset symptoms, an automated alert was sent to the platform, and NNs could immediately consult an emergency physician for future course of action. RESULTS: All 130 patients (median age: 59 years; 59.2% female) were monitored during the study period. There were no deaths or admissions to the intensive care unit attributable to COVID-19; 7.8% of patients were hospitalized (excluding scheduled hospitalization), and 17.1% were admitted to the emergency department at least once during the monitoring period. NNs carried out 1412 regular monitoring calls (average of 10.9 calls per patient), while 55% of the patients downloaded the CAPRI App. CONCLUSIONS: Most patients monitored with CAPRI-COVID were quarantined during the first wave of the pandemic. In addition to the CAPRI App, which helped limit phone calls, NNs played an essential role in patient management.


Subject(s)
COVID-19 , Monitoring, Physiologic , Neoplasms , Patient Navigation , Telemedicine , COVID-19/epidemiology , COVID-19/prevention & control , Emergency Service, Hospital , Female , France/epidemiology , Hospitalization/statistics & numerical data , Humans , Male , Middle Aged , Monitoring, Physiologic/methods , Monitoring, Physiologic/trends , Neoplasms/diagnosis , Neoplasms/epidemiology , Neoplasms/nursing , Patient Navigation/methods , Patient Navigation/organization & administration , Quarantine/methods , SARS-CoV-2 , Telemedicine/methods , Telemedicine/organization & administration
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